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rumpy’s Performance and Empire’s goal is to help children and families affected
MOORESVILLE, NC (February 8, 2021) — The ARCA Menards Series team of Empire Racing Group, LLC and Grumpy’s Performance have launched a foundation to help raise funds and awareness for Prader-Willi Syndrome, which affects children and their ability to function on daily basis.
PWS occurs in 1 of 12,000 births. Dr. Andres Prader and Dr. Heinrich Willi discovered PWS and how it affects the Hypothalamus, the small endocrine organ at the base of the brain that plays a crucial role in many bodily functions. Those functions are regulating hunger, body temperature, balance, pain, sleep mode and wake mode, emotions, fertility and bodily fluids balance. For more information log on to www.PWSAUSA.org
Therefore, Sherry Creek of Empire/Grumpy’s has developed a foundation called “Team Charlie and the Fight against Prader-Willi Syndrome” to raise awareness.
Charlie Rivers Graham is a 13-year old man and personal friend of the team born with the exceedingly rare condition. He understands he’s a little different and functions in a different manner than most kids his age, including his four siblings. His daily routine is especially important for him to have a quality of life.
“Charlie needs a routine with time of day for eating breakfast, lunch and dinner, as well as a grooming routine,” said Shelly Graham, his mother. “One of the most challenging aspects is keeping Charlie’s hunger under control. There are times I need to monitor the pantry door and certain foods so he can’t sneak a snack when I am not looking. At his age, Charlie’s hunger seems constant, like most typical teenagers, but to a higher degree.
This video link offers a better understanding of how the daily routine helps others with PWS. It features Max and his dad, Lon https://vimeo.com/36053096?ref=em-share
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With PWS, there are multiple other physical aspects these children face such as scoliosis, skin issues, and dental problems with cavities because of inactive saliva glands. As of now, there is no cure increasing the need to help the children and their families.
“Seeing how Prader-Willi Syndrome affects children like Charlie and Max has been so eye opening as to what they and their families endure because of this disease,” said Sherry Creek of Empire Racing Group and Grumpy’s Performance. “This foundation and raising awareness of PWS through our team and racing is the least we can do to help. My hope is people will take the time to learn more and join assisting.”
To show their support, Empire and Grumpy’s Performance will carry a decal on the No. 8 Chevrolet of driver Sean Corr and teammate Rich Bickle in the No. 45 Chevrolet for the upcoming ARCA Menards race at Daytona International Speedway. Charlie is joining the team for the upcoming Lucas Oil 200 by General Tire with his parents and three siblings, for any media inquiries. (Photo of Charlie attached)
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For more info and media inquiries and availability with the family, contact: Tim Packman, timpackman@yahoo.com Pcmix driver download for windows.
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About Prader-Willi Syndrome Association
Prader‐Willi Syndrome Association | USA was formed in 1975 to unite parents, professionals and other interested citizens to enhance the quality of life of those affected by PWS. PWSA | USA empowers the PWS community through shared experiences, research, education, advocacy and support. With chapters in most states, ours is the only national PWS support organization whose sole purpose is to assist individuals with the syndrome, and their families, every step of the way.
New York State is introducing an exciting new program that will make it easier to enjoy the outdoors. If you love the state parks, or are an avid boater, angler or hunter, you can choose from several options that provide a lifetime of access and fun in New York State and consolidate your recreation licenses and benefits.
As part of our Adventure License program, Lifetime Empire Passport purchasers will be eligible to apply for one free set (front and back plates) of the custom I Love Parks license plate for their vehicle, plus one free plate renewal. These New York Adventure Plates will show off your pride and passion for state parks and the great outdoors. To learn more visit The New York State Department of Motor Vehicles.
Now available for purchase is a Lifetime Empire Passport -- just buy it once for $750 and enjoy the state parks for years and years to come! Visit the forests, beaches, lakefronts and more..every day if you like, through all of New York's beautiful seasons. As an added convenience, this lifetime benefit issued by the New York State Department of Motor Vehicles (DMV) will appear on your NYS Driver License, Non-Driver ID or Learner Permit as a small maple leaf icon. Learn more about the options and benefits of the Empire Passport program.
Give the gift of the outdoors. Purchase a Lifetime Empire Passport today.
If you love to spend time on New York's waterways, make it easier to carry on the tradition of boating safely. If you have taken an approved safe boating course and received your NY Safe Boating Certificate, with just a few easy steps, you can choose to have your certification also reflected on your NYS Driver License, Non-Driver ID or Learner Permit as a small anchor icon. This DMV designation will eliminate the need to carry your boating safety certificate with you when boating. Learn more about safe boating and this new option.
If you love to fish or hunt, similar lifetime sporting licenses and other designations through the NY State Department of Environmental Conservation are also being offered. Visit the NY State E-Licensing Center.